Archive for the autism Category

my baby is five

Posted in autism, charm city craft mafia, crafting, musings, PDD-NOS on November 28, 2007 by askthesky

dear god, how did this happen?  last year, i wrote about her birth story.  i thought she would be my special needs kid, but it turns out that she’s in the clear and the one i thought i could relax about is struck with special needs at age 3.  sheesh…

birthday!  we started out at church, where the whole choir sang to her.  she loved that part, and told me later it was “the coolest thing ever”.  then we came home, had lunch, and dove into the super yummy gluten/casien free cupcakes i made, with GFCF icing, of course.  autism diet readers: i used a mix from cherrybrook kitchen- super good, and the buttercream icing recipe from Special Diets for Special Kids, but with ghee as the fat instead of margarine.  the icing was to die for.  the cake was ok- i was glad i stuck some gfcf dark chocolate mini-chunks in them right before i baked them (just 3 in each cake).  they gave it the little extra push it needed to take it from someone else’s birthday cake to YOUR birthday cake, if you know what i mean.  and i think you do. 

my child is special needs when it comes to blowing out birthday candles. 

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she’s working on it. 

then, we opened the present.   the present came from ms. small foxherself, who for some reason (niceness) decided to include gifts for zander and i as well, and first to open was mr. manboy.  here is a photo play-by-play of the action:

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wait, is this an…

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wheeeeeeee!

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for those of you who are not sarah, this is the most adorable stuffed octopus there is.  hands down.  and sarah, in case you didn’t know (and i think you didn’t), this is his new favorite animal, so your timing couldn’t have been better.  he has big love for the tentacle toy.  big love. 

then it was sage’s turn…

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mission accomplished. 

she’s named her inky, and no, i don’t know why.  the owl’s name is owl T.  again- ?  they are perfect, and now you all know where to go when you need a special gift for a special someone who happens to be very short.  small fox.  that’s where you go.   i am so cheeky tonight… must finish. 

ok, then we went to the park, according to the birthday lady’s wishes, and played in the leaves.  a perfect day, by all accounts.  i had to leave this one big, cause it’s so nice…

in other news, i finally connected with a local autism supermom, so now i know a lot more about all the DAN! doctors in the vicinity, and all about her kid’s digestive details, and i couldn’t be happier.   more on that as it develops…

also, don’t forget to come to Holiday HEAP!  free hugs at my booth when you mention this ad.  i mean blog.  😉 

nighty night…

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jury service is your right

Posted in autism, charm city craft mafia, musings on November 21, 2007 by askthesky

yes, folks, here i am blogging from the Clarence Mitchell Courthouse in beautiful downtown Baltimore City!  i am torn here in jury service mode- i don’t want to have to find childcare should i be chosen, but i really want to serve.  i think i still hope to be dismissed…

anyway, this gives me the chance to update you on what’s been happening, as i haven’t had a moment to breathe (or shave my legs, or anything) lately.  we’ve started the “autism diet”- it’s going better than i had expected, the kids don’t seem to mind much, and i don’t either.  i know i seemed to have reservations in the last post, but i read the book ‘special diets for special kids’, by lisa lewis, and reading about her son’s story in the first section was like reading a story about my son.  she had her son allergy tested, which was going to be my next step, but the tests for him came back negative.  she tried the diet anyway, feeling like it was something she could at least try (and i so understand that feeling- it’s better than general helplessness), and his language improved dramatically, along with other behavioral improvements.   i feel improved as well- a bit lighter- not as weighed down with digestion, if that makes any sense at all.  i’ve been sneaking some dairy when i’m not with the kids, and i’ve found i almost instantly feel bad again.  everyone who sees zander on a weekly basis has noticed a change in him- his preschool teachers, my administrator at work, my babysitter, the pastor at church… they’ve all commented that he’s been talking more and in longer strings of words- not exactly sentences, but much closer.  none of them knew that i had started the diet, and i have to say i was completely floored by their unsolicited reacions.  i had to go into my neighborhood elementary school this week to discuss the upcoming IEP meeting, and the team leader said she wasn’t sure he needed all the services i was pushing for.  i disagree, of course, but it was sort of nice to hear her say that.  i could go into the city and how insanely backwards they’ve been about this whole process (and still are), but if you live here, you likely already have dealt with that yourself.  if you don’t live here, it’s a big-city, underfunded, failing bureaucracy, you can imagine.  

i am hosting my family, which will make 11 in all, for thanksgiving dinner tomorrow.  right, stuck here at jury duty today, hosting 11 at my yet-to-be-prepped home.  <deep breath>  i’m making the turkey, GF/CF corn pudding, GF/CF pumpkin crisp, and green peas with bacon and onions.  if anyone has any recipes/suggestions, i would appreciate them- i’m also tossing around the idea of writing a cookbook for this diet- there aren’t many out there, certainly not any you’d want to read like i usually read cookbooks- no photos, no cohesive sections, no indexes (?!)…  i’m considering it, in all my free time <snort>. 

i’ve been making a lot of things for the upcoming mafia show (click on that big blue banner on the left sidebar), including upholstered trees,

i’ve enlisted my friend rachel to help me with these card sets, printed from images of my work…

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i’ve also got baby hats, holiday ornaments, barrettes, necklaces, bracelets, grown-up hats, mirrors, art quilts, and mini-collages that i am so psyched about… please come, and say hi at my table!  and, don’t worry, if you live in, say, Iowa, and can’t come, I’ll be updating my etsy shop with all the leftovers… 😉  i’ll also be donating 10% of all my holiday sales to the local autism group- pathfinders for autism

ok, gonna go catch up on my blog reading, now that i’ve caught up with my blog writing… have a peaceful, happy thanksgiving! 

i know, it’s supposed to be a craft blog.

Posted in autism, life in general, musings, PDD-NOS on November 5, 2007 by askthesky

but, i have to talk somewhere. 

so, i’ve now spoken with a few knowledgeable people who think that the gluten-free, casein-free diet (from hell) is not a must.  i am going to have z’s blood tested for those allergies before i spend all my money and sanity on the diet. 

in other news, i won a small battle with the city today, and i’ve been informed that they will, indeed, abide by the crystal-clear and strictly enforced law stating that my child gets free services for his diagnosed disorder.  and to think, all i had to do was threaten to call a laywer.  then, in a moment that can only be described as perfect, i opened the mailbox to find a summons for jury duty.  ah, legalistic society… i invoke your name only to burned by my own responsibilities…

in other news, crafting is happening, at an amazing rate, but as yet i have no photographic evidence of this.  i will get on that.  will do. truly… 

happy halloweeny

Posted in autism, crafting, life in general, PDD-NOS with tags , , , on October 31, 2007 by askthesky

this is sort of cheating, as we did our halloween stuff on sunday, but i wanted to show off the costumes, so we’ll just pretend it’s happening today, m’kay?  greeeaaat. 

introducing, the Owl Family! 

here, i’m teaching my owlets how to say “whoooo”, although in fact i missed smiling with both my owlets in the only photo known to man where they are both looking at the camera AND smiling.  still cute, if you ask me. 

i just used felt (hot glued the faces and the wing stripes, then sewed them to the shirts), and made what sarah described to me in her response to the original post about making some owls, only i adapted it so that zander would wear it.  he wasn’t going for anything near his face, and actually it was only by some great distractionary techniques on my part that he kept it on at all.  oh, i also used a design from an old martha mag that had a pumpkin mask with an owl drawing that seemed good to me as a guide.   

speaking of zander’s sensitivities, we got the news this week that he is on the spectrum for autism.  while it’s a very heavy word, and i’m feeling that weight, i’m focusing on how to get him what he needs, and i really don’t feel crushed or even bogged down by it.  that said, i’m really struggling with the diet that’s become so touted to help with the behaviors associated with the disorder.  i’m not sure i can (or want to) go through with it… please share if you’ve had experience with it or know someone who has. 

so, you know when you’ve been climbing mountains in your life for a while, and then you think you’ve crested the final plateau, only to find the next ridiculous slope stretching up above you?  yeah.  that’s where i’m at, consider this your postcard.  i think though, as in all things, i could focus on the disappointment, or i can (and will) check out the view from here, strap on the harness, and climb on.  come along, please, if you’ve got the stomach for it… and i know you do.